Lifestyle; living with fibromyalgia πŸ’ŠπŸ’‰

This seems to be the perfect time to finally share this with everyone. Thanks Colleen for giving me the kick to do it!!

I have suffered with fibromyalgia since around 2012/2013 (it’s hard to know exactly as diagnosis isn’t easy). Something some of you might have heard of, but others you probably have no clue about it. So I’ll explain to you a bit about it first.. It is a long term condition that causes pain all over the body. As well as this pain some sufferers also have; increased sensitivity to pain, fatigue, muscle stiffness, difficulty sleeping, problems with mental processes (fibro-fog), headaches & IBS. The cause of fibromyalgia isn’t known, but it is thought it can be brought on by a physically or emotionally stressful event or it can be in your genes.

That was quite a lot to take in, I appreciate that, but out of those I suffer with almost all of them. The sensitivity to pain, my most hated one… So if I itch my arm it like really hurts, like someone has just punched me really hard 😩 fatigue is an obvious one… If you know me personally you will know about this one. I used to work 3 jobs at once, even when I cut it down to just the 1 I was working 40 hour weeks & developing this meant I had no choice but to cut down to part time hours… How am I ever going to afford anything?! It so hard & I don’t get any help. I have to hope that I can get through a few hours overtime a week. But if I’m having a bad time, I physically cannot do it. 

I do go to the gym, yes. But where you all looove your leg days, this is my hardest one. My legs feel like they’re on fire after doing 2 squats, that is no exaggeration. So if I don’t have much on that week I can push myself a little harder. But if I make it to he gym 2 times a week it’s amazing for me! Plus the restless legs at night is horrendous… Did I just kick Sam in his sleep or did I twitch? πŸ™„πŸ˜‚


I really hope you’re starting to get a little bit of a vibe of how I feel?! 

I work half days & I nap in the afternoon on the day that I work in the morning! That was a weird sentence, but I think it made sense?! πŸ˜‚ all of the other days I work in the afternoon so I can relax before work.

As for the fibro-fog it’s one of hardest things when you’re at work.. I do tend to say to a lot of people ‘I can’t spit my words out today, sorry’ now you’ll know if you’re talking to me on the phone πŸ˜‚πŸ˜‚πŸ™ˆ 

I can have a flare up at ANY time, but right now I am on the verge. I am emotionally drained with my dog dying, sorting out our first home, working overtime to try to pay for this… I am struggling! 

People find it so hard to believe as I ‘look okay’. Well, next time you think that honestly please really look at me… I have bags under my eyes, I have tired looking eyes, I’m not as cheery, I’m grumpy (it’s bad enough being a bloody girl with hormones) I’m snappy, I’ve got bad skin etc etc. I am NOT lazy, I am just not as well as other people.

 I don’t treat it with medication, I have tried all of that but I thought instead I would change my lifestyle, which I told you about above. I chose that. I tried support groups etc, but even that wore me out πŸ™ˆ I hope this has helped & if anyone wants to ask me anything please feel free to! 

Caitlin xo 

23 Comments

  1. I’ve been thinking for a while that I might have this, but I always end up telling myself that it’s not that bad- so it can’t be fibro. I honestly am just way too tired of going to the doctor with a problem, them doing all the tests, and then telling me there’s nothing wrong with me. So I guess I’ll just have to deal (: hope you’re managing it well xoxo

    Liked by 2 people

    1. Please don’t just leave it it’s took me 16 years to finally get to the bottom of me having fibromyalgia and getting diagnosed due to just leaving it and getting worse and worse
      I also thought I was getting nowhere and I’m still now not fully understanding it as the doctors or consultants haven’t fully explained anything that’s why I’ve tried to follow people to see there symptoms too and for help and advice X karla x

      Liked by 2 people

      1. Thank you, Karla. I’m still monitoring my own body and making sure I’m doing everything I can to help myself- if I’m checking off all the boxes and STILL feeling bad, I’m definitely gonna go back to the doctor. I appreciate your advice (:

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  2. I’m really happy you opened up about this! I had no idea what this was and what you go through! I’m really sorry you have to deal with this on the daily. πŸ˜• xx

    Liked by 2 people

  3. Thanks for sharing this post and opening up. So many people suffer in ways that aren’t always seen and it’s horrible to think you could be right next to someone and that certain pains and feelings become ‘normal’ for them because of illnesses like fibromyalgia x

    Liked by 1 person

  4. My mom was diagnosed with fibromyalgia when she was around her early 30s. It feels like she has been dealing with this illness my entire life. I don’t even remember when there wasn’t a time where she wasn’t dealing with this. I’m not gonna lie, it’s been definitely hard on all of us but most especially on her. So thank you for shedding light on this illness. We need to bring more awareness.

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  5. I’ve never heard of this condition before, so it was lovely for you to enlighten people like me about this. It sucks, but I am so glad you are being proactive and helping yourself and have a positive mentality! Meditation helps me when things are getting too much and that domino effect starts happening within my body – I suffer severe anxiety and depression which I understand are completely different conditions however some symptoms are shared. There needs to be more awareness about this as it sounds as though it could be fairly common and unnoticed to many people! It’s wonderful to hear that you are still working as much as you can, however know your limits! X

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    1. Thankyou so much!! That’s really kind. A lot of people have told me to try meditation so perhaps I’ll give it a go ☺️☺️ anxiety I can relate with you on, it’s awful isn’t it! Keep smiling xxx

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  6. Hey Caitlin ☺️ It took my doctor nearly 5 years to diagnose my fibromyalgia (alongside hypermobility). I’ve been living with knowing what it is for roughly 3ish years, but I find the main thing I struggle with is work. My job is very demanding, and I work in healthcare and myself have heard my colleague use the term β€˜fibro is an excuse for laziness’. How do you cope with work, have you explained it to your management, do you have any alterations? I try not to use my fibro as a β€˜sympathy card’ so I don’t tell anyone about it – but my fatigue hits the most when at work x

    Liked by 1 person

    1. I have only told the people I work closely with & my manager. I’m lucky she is quite sympathetic & easy to get on with! But yes I work only 24 hours a week which is much more manageable X

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  7. Good for you! I don’t take meds either – I prefer lifestyle choices to get me through. Eat right. Yoga. Quality sleep however is the thing that eludes me. I am tired almost all of the time, and have some level of pain that I am able to tolerate. Best wishes to you!

    Liked by 1 person

  8. Wow. sorry to hear. I have been getting shooting pain in my right foot since last year. It has only happened 4 times though so far. It hurts for hours and takes my breath away. I go to bed or soak my foot in a foot bath. But if I am at work I have to sit, after work hurry and get home. I think it’s fibromyalgia as well. Luckily it is not that bad at the moment. I feel some of your pain and hope it dissipates with time. Stay strong. Thanks for sharing, it helps to know that you are not the only one.

    Liked by 1 person

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